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  • throughthefibrofog
    Claire, London UK
    @throughthefibrofog

Images by throughthefibrofog

Woke up and it’s blue skies and beautiful sunshine ☀️.
But after a dash to the doctors to get an appointment for next week (due to stupid appointment booking system) I’m feeling very ‘off’.
So I thought I’d post a pretty picture of a flower snapped in a greenhouse a few days ago.
It seems like a long time since summer.
Of course there are beautifully aspects of nature around.
But it’s not quite the same as being able to sit and have a picnic in the park.
I think that’s why I’m feeling a bit low.
Stuck inside due to the cold isn’t how I like to live.
Not that I can be out and about all the time - I’m far too tired for that!
But I do feel that fresh air and warmth is ‘healing’ in some way.
Both to mind and body.
Hope the skies are blue and there is some warmth from the sun where you are.
If you’re in the 🇬🇧 then hopefully it’s not too long until spring!
.
#fibromyalgia #fibro #posturalorthostatictachycardiasyndrome #pots #potsie #dysautonomia #eds #ehlersdanlossyndrome #migraine #headache #vertigo #vestibular #dizzy #pain #fatigue #raynauds #mcas #mcad #mastcellactivation #mastcellactivationsyndrome #histamine #lowhistamine #chronicillness #chronicpain #chronicfatigue #flowers #nature #summer #health #wellness
Woke up and it’s blue skies and beautiful sunshine ☀️. But after a dash to the doctors to get an appointment for next week (due to stupid appointment booking system) I’m feeling very ‘off’. So I thought I’d post a pretty picture of a flower snapped in a greenhouse a few days ago. It seems like a long time since summer. Of course there are beautifully aspects of nature around. But it’s not quite the same as being able to sit and have a picnic in the park. I think that’s why I’m feeling a bit low. Stuck inside due to the cold isn’t how I like to live. Not that I can be out and about all the time - I’m far too tired for that! But I do feel that fresh air and warmth is ‘healing’ in some way. Both to mind and body. Hope the skies are blue and there is some warmth from the sun where you are. If you’re in the 🇬🇧 then hopefully it’s not too long until spring! . #fibromyalgia  #fibro  #posturalorthostatictachycardiasyndrome  #pots  #potsie  #dysautonomia  #eds  #ehlersdanlossyndrome  #migraine  #headache  #vertigo  #vestibular  #dizzy  #pain  #fatigue  #raynauds  #mcas  #mcad  #mastcellactivation  #mastcellactivationsyndrome  #histamine  #lowhistamine  #chronicillness  #chronicpain  #chronicfatigue  #flowers  #nature  #summer  #health  #wellness 
Well it is blue Monday today.
It is black skies, pouring rain and wind here 🌧💨🌫.
I’m trying to keep busy and ignore the dreary weather and start the week feeling positive.
Hope that the day isn’t too blue for you.
.
#fibromyalgia #pots #eds #mcas #mcad #migraine #headache #vertigo #raynauds #bluemonday
Being brave is what you are supposed to do, to be.
It’s almost expected if you are unwell.
Phrases like ‘keep your chin up’ and ‘keep your head above the water’ are often-said.
Of course, it’s important to do to the best you can.
To not give in or surrender to pain or other symptoms and let them take over your life.
Because then being ill becomes your last life and your being.
But being brave requires huge amounts of effort and strength and energy.
It requires a lot to each day know that you are going to be in pain, that you need to exercise, take pills, do physio etc etc.
And try and do it with at least a bit of a smile on your face.
So sometimes it gets too much.
And being brave is a bit too difficult.
I think it’s normal to have ‘off’ days.
To need to watch some TV and eat a few biscuits and generally be a bit more restful and quiet.
That’s my vibe today.
It’s ok if it’s yours too (in my opinion).
.
#fibromyalgia #fibro #pots #posturalorthostatictachycardiasyndrome #dysautonomia #eds #ehlersdanlossyndrome #hypermobility #migraine #headache #vertigo #vestibularmigraine #pain #dizzy #fatigue #raynauds #mcas #mcad #mastcellactivation #mastcellactivationsyndrome #chronicfatiguesyndrome #chronicfatigue #chronicillness #chronicpain #invisibleillness
Being brave is what you are supposed to do, to be. It’s almost expected if you are unwell. Phrases like ‘keep your chin up’ and ‘keep your head above the water’ are often-said. Of course, it’s important to do to the best you can. To not give in or surrender to pain or other symptoms and let them take over your life. Because then being ill becomes your last life and your being. But being brave requires huge amounts of effort and strength and energy. It requires a lot to each day know that you are going to be in pain, that you need to exercise, take pills, do physio etc etc. And try and do it with at least a bit of a smile on your face. So sometimes it gets too much. And being brave is a bit too difficult. I think it’s normal to have ‘off’ days. To need to watch some TV and eat a few biscuits and generally be a bit more restful and quiet. That’s my vibe today. It’s ok if it’s yours too (in my opinion). . #fibromyalgia  #fibro  #pots  #posturalorthostatictachycardiasyndrome  #dysautonomia  #eds  #ehlersdanlossyndrome  #hypermobility  #migraine  #headache  #vertigo  #vestibularmigraine  #pain  #dizzy  #fatigue  #raynauds  #mcas  #mcad  #mastcellactivation  #mastcellactivationsyndrome  #chronicfatiguesyndrome  #chronicfatigue  #chronicillness  #chronicpain  #invisibleillness 
Today’s feeling: bleurgh!
It’s cold and rainy and the sky is black and I would like it to be blue.
And I woke up with a headache and black circles under my eyes despite sleeping ok(ish).
It’s an ‘off’ day so-to-speak.
And in an hour I have to go to physio.
Have I done my physio properly?
Nope.
Not because I am lazy or can’t be bothered or think it’s a waste of time.
Just because there is a lot of it to do for different reasons (vestibular, muscular, respiratory) and on top of walking and yoga and just trying to live my life certain things slip by the wayside.
So today is a bit rubbish.
But I think it’s important to just realise that is sometimes the case.
If the rain stops I’ll have a walk in the park by the hospital.
I love that park, it gives me something to focus on that is nice after the appointment.
Hope you have blue skies not black ones today (literally and symbolically!).
.
#fibromyalgia #fibro #pots #potsie #dysautonomia #eds #ehlersdanlossyndrome #hypermobility #migraine #headache #vertigo #vestibular #dizzy #balance #mcas #mcad #mastcellactivation #mastcellactivationsyndrome #pain #fatigue #physiotherapy #chronicillness #chronicpain #chronicfatiguesyndrome #me #invisibleillness
Today’s feeling: bleurgh! It’s cold and rainy and the sky is black and I would like it to be blue. And I woke up with a headache and black circles under my eyes despite sleeping ok(ish). It’s an ‘off’ day so-to-speak. And in an hour I have to go to physio. Have I done my physio properly? Nope. Not because I am lazy or can’t be bothered or think it’s a waste of time. Just because there is a lot of it to do for different reasons (vestibular, muscular, respiratory) and on top of walking and yoga and just trying to live my life certain things slip by the wayside. So today is a bit rubbish. But I think it’s important to just realise that is sometimes the case. If the rain stops I’ll have a walk in the park by the hospital. I love that park, it gives me something to focus on that is nice after the appointment. Hope you have blue skies not black ones today (literally and symbolically!). . #fibromyalgia  #fibro  #pots  #potsie  #dysautonomia  #eds  #ehlersdanlossyndrome  #hypermobility  #migraine  #headache  #vertigo  #vestibular  #dizzy  #balance  #mcas  #mcad  #mastcellactivation  #mastcellactivationsyndrome  #pain  #fatigue  #physiotherapy  #chronicillness  #chronicpain  #chronicfatiguesyndrome  #me  #invisibleillness 
Don’t you just love it when you’re walking towards your medical appointment and are only about five minutes walk away and they call you and say the doctor hasn’t shown up?
My blood was boiling for about 15 minutes.
Then I decided that stress and high heart rate wasn’t worth it.
So I decided that I would see the positive (believe me it took a LOT of doing!) and thought that it gave me more time to get a cup of tea before getting on the tube to the next appointment (don’t you love a two appointment day!).
So now I’m sitting drinking tea and reading a magazine.
And trying to get my heart to calm down . . . ❤️😉.
.
Pretty doors. I’ve been noticing them a lot lately. Maybe I’ll start I incorporating pretty doors in with the nature pics. What do you think? It’s hard doing flowers in mid winter! ❄️🌸.
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#fibromyalgia #fibro #pots #eds #ehlersdanlossyndrome #dysautonomia #migraine #headache #mcas #mcad #vertigo #vestibularmigraine #raynauds #chronicillness #pain #dizzy #doors #prettydoors
Don’t you just love it when you’re walking towards your medical appointment and are only about five minutes walk away and they call you and say the doctor hasn’t shown up? My blood was boiling for about 15 minutes. Then I decided that stress and high heart rate wasn’t worth it. So I decided that I would see the positive (believe me it took a LOT of doing!) and thought that it gave me more time to get a cup of tea before getting on the tube to the next appointment (don’t you love a two appointment day!). So now I’m sitting drinking tea and reading a magazine. And trying to get my heart to calm down . . . ❤️😉. . Pretty doors. I’ve been noticing them a lot lately. Maybe I’ll start I incorporating pretty doors in with the nature pics. What do you think? It’s hard doing flowers in mid winter! ❄️🌸. . #fibromyalgia  #fibro  #pots  #eds  #ehlersdanlossyndrome  #dysautonomia  #migraine  #headache  #mcas  #mcad  #vertigo  #vestibularmigraine  #raynauds  #chronicillness  #pain  #dizzy  #doors  #prettydoors 
It’s exhausting this being unwell and trying to get better business!
It feels like every day is a relentless round of walking and physio and housework.
Not forgetting the medical appointments such as the two tomorrow.
Hope you are getting through your list of things to do without getting too tired 🤞❤️.
.
#fibromyalgia #fibro #pots #dysautonomia #eds #ehlersdanlossyndrome #hypermobility #migraine #headache #vertigo #vestibularmigraine #mcas #mcad #mastcellactivationdisorder #raynauds #pain #dizzy #fatigue #tired #walk #exercise #health #physiotherapy #wellness #wellbeing
It’s exhausting this being unwell and trying to get better business! It feels like every day is a relentless round of walking and physio and housework. Not forgetting the medical appointments such as the two tomorrow. Hope you are getting through your list of things to do without getting too tired 🤞❤️. . #fibromyalgia  #fibro  #pots  #dysautonomia  #eds  #ehlersdanlossyndrome  #hypermobility  #migraine  #headache  #vertigo  #vestibularmigraine  #mcas  #mcad  #mastcellactivationdisorder  #raynauds  #pain  #dizzy  #fatigue  #tired  #walk  #exercise  #health  #physiotherapy  #wellness  #wellbeing 
Ending the weekend with a migraine brewing in my temples.
Think it’s a combination of poor sleep last night, being in the cold for a bit too long today and a little too much sugar.
Also wondering if it’s because I’ve been doing a 30 day yoga program and I’ve got a lot of pain in my shoulders which I’m guessing could cause tension in my neck muscles?
Anyone else find that tense back or shoulder muscles can contribute to headache or migraine?
.
#fibromyalgia #fibro #posturalorthostatictachycardiasyndrome #pots #potsie #dysautonomia #eds #ehlersdanlossyndrome #hypermobility #migraine #headache #chronicheadache #dizzy #pain #mcas #mcad #mastcellactivation #mastcellactivationsyndrome #chronicillness #invisibleillness #health #wellness #wellbeing #raynauds #interstitialcystitis #exercise #yoga #backpain #shoulderpain
Ending the weekend with a migraine brewing in my temples. Think it’s a combination of poor sleep last night, being in the cold for a bit too long today and a little too much sugar. Also wondering if it’s because I’ve been doing a 30 day yoga program and I’ve got a lot of pain in my shoulders which I’m guessing could cause tension in my neck muscles? Anyone else find that tense back or shoulder muscles can contribute to headache or migraine? . #fibromyalgia  #fibro  #posturalorthostatictachycardiasyndrome  #pots  #potsie  #dysautonomia  #eds  #ehlersdanlossyndrome  #hypermobility  #migraine  #headache  #chronicheadache  #dizzy  #pain  #mcas  #mcad  #mastcellactivation  #mastcellactivationsyndrome  #chronicillness  #invisibleillness  #health  #wellness  #wellbeing  #raynauds  #interstitialcystitis  #exercise  #yoga  #backpain  #shoulderpain 
Asking for help isn’t wrong, or weak or something to be ashamed of.
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#fibromyalgia #pots #eds #migraine #headache #mcas #mcad #health #wellbeing #wellness #selfcare #selflove #strength #help #askforhelp
Self-worth.
My understanding of self-worth used to be bound up with my work.
It was about chasing success, deadlines, information l, colleagues, achievements and even the cup of coffee I bought on the way to my desk.
I loved my work.
There was rarely a day I didn’t want to go to work.
Now I don’t work every day.
Sometimes I don’t work at all in a week.
So my self-worth has to come from other sources.
I haven’t really found something that compares, to be honest.
There’s a degree in being part of a family, a friend, keeping the house clean and tidy and improving my fitness.
Where do you get your self-worth from?
It’s different for everyone I would think - I’d be interested to hear.
.
#fibromyalgia #posturalorthostatictachycardiasyndrome #pots #potsie #dysautonomia #eds #ehlersdanlossyndrome #migraine #headache #mcas #mcad #mastcellactivationdisorder #raynauds #dizzy #pain #chronicillness #selfworth
Self-worth. My understanding of self-worth used to be bound up with my work. It was about chasing success, deadlines, information l, colleagues, achievements and even the cup of coffee I bought on the way to my desk. I loved my work. There was rarely a day I didn’t want to go to work. Now I don’t work every day. Sometimes I don’t work at all in a week. So my self-worth has to come from other sources. I haven’t really found something that compares, to be honest. There’s a degree in being part of a family, a friend, keeping the house clean and tidy and improving my fitness. Where do you get your self-worth from? It’s different for everyone I would think - I’d be interested to hear. . #fibromyalgia  #posturalorthostatictachycardiasyndrome  #pots  #potsie  #dysautonomia  #eds  #ehlersdanlossyndrome  #migraine  #headache  #mcas  #mcad  #mastcellactivationdisorder  #raynauds  #dizzy  #pain  #chronicillness  #selfworth 
Any tips for getting rid of mouth ulcers? 
I’ve suddenly got a few including a large one at the back of my throat and it’s so painful!
Thank you!
.
#fibromyalgia #pots #eds #ehlersdanlossyndrome #mcas #mcad #migraine #headache #vertigo #vestibular #dizzy #pain #balance #health #wellness #wellbeing #mouthulcer
Excuse the dirty trainers . . .
Back getting prescriptions at the pharmacist with the prettiest floor.
As I had to wait for nearly an hour I thought about New Years resolutions or goals or intentions.
I also thought about what I achieved last year.
It feels like very little.
Except I improved my fitness significantly and built better relationships with those that matter.
Which are important and valuable achievements I think.
So next year, other than the big one of gaining reliable employment, I just want to work on those two things as well.
Hope you had a restful time over the holidays ❤️.
.
#fibromyalgia #posturalorthostatictachycardiasyndrome #pots #dysautonomia #eds #ehlersdanlossyndrome #migraine #headache #mcas #mcad #mastcellactivationsyndrome #raynauds #interstitialcystitis #dizzy #pain #wellness #wellbeing #health
Excuse the dirty trainers . . . Back getting prescriptions at the pharmacist with the prettiest floor. As I had to wait for nearly an hour I thought about New Years resolutions or goals or intentions. I also thought about what I achieved last year. It feels like very little. Except I improved my fitness significantly and built better relationships with those that matter. Which are important and valuable achievements I think. So next year, other than the big one of gaining reliable employment, I just want to work on those two things as well. Hope you had a restful time over the holidays ❤️. . #fibromyalgia  #posturalorthostatictachycardiasyndrome  #pots  #dysautonomia  #eds  #ehlersdanlossyndrome  #migraine  #headache  #mcas  #mcad  #mastcellactivationsyndrome  #raynauds  #interstitialcystitis  #dizzy  #pain  #wellness  #wellbeing  #health 
Debating (rather belatedly!) whether to do this or not . . . Are you doing it this year?
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#fibromyalgia #pots #eds #ehlersdanlossyndrome #dysautonomia #migraine #headache #mcas #mcad #interstitialcystitis #newyear #newyearsresolution #intentions #wellness #wellbeing #health #happiness
My ‘best of my nine’ doesn’t look too pretty due to the text posts but it’s really nice to look back at some of my most liked posts.
They show the summer, autumn and days out.
They highlight the important message that not all disabilities are visible.
In many ways I don’t feel that I achieved much this year, especially in comparison to years past.
But I did create this account and I’m overwhelmed that so many people like it.
So thank you! ❤️.
.
#2017bestnine #health #wellbeing #wellness #positive #newyear #lookingforward
My ‘best of my nine’ doesn’t look too pretty due to the text posts but it’s really nice to look back at some of my most liked posts. They show the summer, autumn and days out. They highlight the important message that not all disabilities are visible. In many ways I don’t feel that I achieved much this year, especially in comparison to years past. But I did create this account and I’m overwhelmed that so many people like it. So thank you! ❤️. . #2017bestnine  #health  #wellbeing  #wellness  #positive  #newyear  #lookingforward 
From Brene Brown, The Gifts of Imperfection.
It’s always a work in progress I think to stop ourselves comparing our health, family, finances, work situation etc etc to others.
But all that comparison does is make ourselves feel bad, worthless, ‘less than’.
So I’m trying to go into 2018 focusing on me - not on the perceived virtues of others.
Let’s all be authentic!
.
#fibromyalgia #posturalorthostatictachycardiasyndrome #pots #eds #ehlersdanlossyndrome #dysautonomia #hypermobility #hEDS #migraine #headache #mcas mcad #mastcellactivationsyndrome #raynauds #interstitialcystitis #health #wellbeing #exercise #authentic #authenticity #chronicillness
From Brene Brown, The Gifts of Imperfection. It’s always a work in progress I think to stop ourselves comparing our health, family, finances, work situation etc etc to others. But all that comparison does is make ourselves feel bad, worthless, ‘less than’. So I’m trying to go into 2018 focusing on me - not on the perceived virtues of others. Let’s all be authentic! . #fibromyalgia  #posturalorthostatictachycardiasyndrome  #pots  #eds  #ehlersdanlossyndrome  #dysautonomia  #hypermobility  #hEDS  #migraine  #headache  #mcas  mcad #mastcellactivationsyndrome  #raynauds  #interstitialcystitis  #health  #wellbeing  #exercise  #authentic  #authenticity  #chronicillness 
Hope everyone is having a restful time in this period between Christmas and New Year!
I thought I had got away with no medical appointments during that time but no(!) I had an ENT appointment come up.
I’ve been having the feeling of tightness in my throat for quite a few months.
To my surprise the doctor decided to put a camera down my nose right there and then 😳.
It was rather uncomfortable and a tad painful for a few seconds.
But the whole thing lasted about 3 or 4 minutes so very quick.
The doctor said everything looked normal.
That the feeling was probably due to fibromyalgia and, after I explained what mcas was(!), that it could be contributing as well.
So it was quite reassuring to have the test.
Have a lovely New Year’s Eve whether you are going out or staying in (that’s me!). ❤️
.
#fibromyalgia #pots #eds #migraine #headache #mcas #mcad #mastcellactivationdisorder #dysautonomia #chronicheadache #vertigo #vestibularmigraine #ent #chronicillness #chronicpain #chronicfatigue #invisibleillness
Hope everyone is having a restful time in this period between Christmas and New Year! I thought I had got away with no medical appointments during that time but no(!) I had an ENT appointment come up. I’ve been having the feeling of tightness in my throat for quite a few months. To my surprise the doctor decided to put a camera down my nose right there and then 😳. It was rather uncomfortable and a tad painful for a few seconds. But the whole thing lasted about 3 or 4 minutes so very quick. The doctor said everything looked normal. That the feeling was probably due to fibromyalgia and, after I explained what mcas was(!), that it could be contributing as well. So it was quite reassuring to have the test. Have a lovely New Year’s Eve whether you are going out or staying in (that’s me!). ❤️ . #fibromyalgia  #pots  #eds  #migraine  #headache  #mcas  #mcad  #mastcellactivationdisorder  #dysautonomia  #chronicheadache  #vertigo  #vestibularmigraine  #ent  #chronicillness  #chronicpain  #chronicfatigue  #invisibleillness 
I’ve never been a big drinker but for a year or so after not being able to drink due to my medical conditions and medications I really missed it.
Now I couldn’t care less!
I’m far more annoyed about not being able to drink coffee or eat chocolate!
If you aren’t able to drink alcohol any more do you still miss it?
.
#fibromyalgia #posturalorthostatictachycardiasyndrome #pots #dysautonomia #eds #ehlersdanlossyndrome #migraine #headache #mcas #mcad #mastcellactivation #mastcellactivationsyndrome #raynauds #pain #fatigue #dizzy #chronicillness #chronicpain #invisibleillness
I’ve never been a big drinker but for a year or so after not being able to drink due to my medical conditions and medications I really missed it. Now I couldn’t care less! I’m far more annoyed about not being able to drink coffee or eat chocolate! If you aren’t able to drink alcohol any more do you still miss it? . #fibromyalgia  #posturalorthostatictachycardiasyndrome  #pots  #dysautonomia  #eds  #ehlersdanlossyndrome  #migraine  #headache  #mcas  #mcad  #mastcellactivation  #mastcellactivationsyndrome  #raynauds  #pain  #fatigue  #dizzy  #chronicillness  #chronicpain  #invisibleillness